New data platform
The British Paediatric Surveillance Unit (BPSU) is proud to announce the launch of a new data collection platform as of 4 April. It will be piloted with our study, surveillance of neonatal stroke, which runs from April 2022 to May 2023 (13 months of surveillance), with follow up until May 2025.
The study will be led by the neonatal research team at The University of Nottingham headed by Dr T’ng Chang Kwok and Professor Don Sharkey. It is funded by the 2019 Sir Peter Tizard bursary and supported by Bliss, the national charity for babies born preterm or sick.
This study will inform us of the impact of neonatal stroke to better allocate resources. It will describe the associated factors, management and outcomes following neonatal stroke. Neuroimages will also be collected as part of the study which will help with understanding the condition and its diagnosis. By exploring how babies with stroke present and are cared for, future studies looking at prevention and new treatment options can be better designed.
We’ve developed some FAQs for clinicians registered on the BPSU scheme about how to use this new data collection platform, including how you will use this alongside our current ‘orange card’ platform.
Add walkthrough video
Frequently asked questions
Find below some answers to questions that may arise when you use the new data collection platform. To receive the latest updates follow BPSU on Twitter @BPSUtweet.
We aim to pilot the Neonatal stroke study for some time before moving all studies to the new system. While we pilot the platform, we may add additional studies to the new system. You will be notified when the old platform is no longer being used to collect data.
Before the 1st of every month you will be sent an email to either report cases you have seen in the past month or to indicate you have nothing to report. Every week you will be also sent a reminder if you are yet to respond to the current card. You may use the link to reminder emails to also report cases to the current reporting card.
To indicate you have seen a case click the green ‘BPSU Case Reporting Card’ button which will take you to the reporting screen where you can specify which cases you have seen. You must press submit in order for your responses to be logged.
You can also login to the site directly and report your cases from your dashboard by clicking the relevant card.
Which email you open will correspond with the card you will report to. If you open a January 2022 reporting card email you will be taken to the January 2022 reporting card. Likewise, if you open an older card email you will be taken to an older card not the current one. If you wish to access other cards, you may login to your dashboard and report to your cards there.
To indicate you have nothing to report click the red ‘Nothing to report’ button. Your response will be automatically logged. You can also click the ‘No cases button’ next to the cards on your dashboard.
After logging into your dashboard, you will find all the cards sent to you under the ‘Card responses’ section. You can click on the month which you have a case for, and you will be taken to the reporting screen.
If you are not able to login you must click the forgotten password button on the login screen. You will be sent a password reset email. If you are still unable to login after resetting your password please contact firstname.lastname@example.org
We suggest setting a memorable case ID when taken to the case details form after submitting a case. The ID will help you locate a questionnaire if you are not able to see it amongst all your questionnaires. If you are not able to see your questionnaires even after the case details form, please contact the BPSU office with your BPSU ID.
There are two ways to know which questionnaire is linked to what case. The first is the case reference which has two initials and six numbers for example ST-2111-22.
Noting this down prior to completing the questionnaire will help you find the questionnaire as the case reference is also on this page. Another way to find your questionnaire is by adding a unique code in the case details form. This can only be seen by you and can help you locate your cases quicker on the questionnaire screen.
You do not have to complete the questionnaire in one sitting. You may save your progress by using the save button at the bottom of the screen.
Clicking the ‘Questionnaires’ button on your dashboard will show you all of your questionnaires. To finish your questionnaire, find the right questionnaire that has the ‘In progress’ wording beside it, select and continue to edit.
If you have another case to report to a card you have responded to in the past you may go back to the original email that was sent to you. You must remember the email you access dictates which card you go on to.
You may also login to the platform and scroll down on your dashboard to the previous cards section. Here you can use the drop down to select the card you wish to report to and you will be taken to the reporting screen of that card.
If you encounter any problem on the site please email the BPSU office at email@example.com with your problem in the title.
Please give us context to the problem you are experiencing by letting the office know what you were doing prior to the error and during it. Attaching screenshots can also be helpful.
Please login to your clinician dashboard. There you will find the option to update your details. Alternatively, you may email firstname.lastname@example.org with your request.
Please email email@example.com and request to be taken off the reporting scheme.