British Paediatric Surveillance Unit
The BPSU is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.
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Impact
Since 1985 the BPSU has facilitated research on over 100 rare conditions, and influenced decisions on these diseases and its impact on patients.
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Run a study
We welcome applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
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Annual report
Our latest report for 2019-20 is now available to download and includes updates on current BPSU studies - accidental poisoning, fetal alcohol syndrome, neonatal herpes simplex disease and much more.
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The e-reporting card is sent to over 4000 clinicians, has surveyed over 120 conditions and has published over 300 peer reviewed papers
Click below to read more about specific BPSU facilitated studies
Current Studies Past studiesLatest news
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BPSU announces winner of the Sir Peter Tizard Bursary 2021-22
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BPSU will soon launch a new data collection platform
We have worked with the University of Dundee Health Informatics Centre on a new platform to collect data on rare diseases - making it easier for clinicians to report cases and complete their clinical questionnaires.
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Increase in Hepatitis cases in children under investigation
RCPCH responds to higher than usual rates of liver inflammation (hepatitis) in children. This page was updated on 11 May to reflect findings from the ongoing UKHSA investigation.
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