British Paediatric Surveillance Unit
The BPSU is a leading centre for rare paediatric disease surveillance, which has conducted surveillance on more than 130 conditions and published over 300 peer reviewed papers. Through our monthly e-reporting card, we enable researchers to investigate rare disorders affecting children in the UK and Republic of Ireland.
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About
The BPSU is a world leading centre for conducting rare paediatric disease surveillance and facilitates research into rare childhood conditions. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions, or treatments each year. Since 1985 we have facilitated research on over 130 rare conditions, and have improved outcomes for patients such as policy change, care, and further research. have influenced decisions on these diseases and its impact on patients.
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Impact
Since 1985 the BPSU has facilitated research on over 100 rare conditions, and influenced decisions on these diseases and its impact on patients.
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Run a study
We welcome applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
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Welcome to our new site
Here you can find our dedicated BPSU website with more information on the impact the BPSU has had over the past four decades, past studies, how to start your own study with us and upcoming events.