British Paediatric Surveillance Unit
The BPSU is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.
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Impact
Since 1985 the BPSU has facilitated research on over 100 rare conditions, and influenced decisions on these diseases and its impact on patients.
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Run a study
We welcome applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
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Annual report
Our latest report for 2019-20 is now available to download and includes updates on current BPSU studies - accidental poisoning, fetal alcohol syndrome, neonatal herpes simplex disease and much more.
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The BPSU eReporting card
The e-reporting card is sent to over 4,000 clinicians, has surveyed over 120 conditions and has published over 300 peer reviewed papers.
Sign up to receive e-card See current studies See past studiesLatest news from BPSU
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Some exciting news
We are delighted to announce that BPSU microsite is launched...
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BPSU announces winner of the Sir Peter Tizard Bursary 2021-22
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BPSU will soon launch a new data collection platform
We have worked with the University of Dundee Health Informatics Centre on a new platform to collect data on rare diseases - making it easier for clinicians to report cases and complete their clinical questionnaires.
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